novità dal mondo della ricerca e degli organismi erogatori di servizi socio-sanitari
For the first time, IPF patient advocacy groups came together to develop a European IPF Charter in support of more standardised care and equal access to diagnosis, treatment and after care options for those with IPF in Europe. The Charter has been endorsed my medical experts who are actively involved in IPF management and we are currently approaching various stakeholders to secure additional endorsement.
The European IPF Charter calls upon European institutions and national governments to guarantee patients’ rights to early diagnosis, access to care including medication and lung transplantation, standardised management of IPF, high-quality information and improved access to palliative and end-of-life care. The Charter lays down concrete recommendations that, if adopted, would ensure improvements in IPF patients’ quality of life, whilst supporting efforts to develop better long-term treatments and ultimately find a cure.
Barcelona - Spain | september 2013 | ERS Meeting
Thanks to all the doctors and researchers who have given us "breath of hope" with these wonderful images!
"EVERY BREATH OF HOPE YOU TAKE"