Breath of Hope: Giving a future to patients living with rare pulmonary diseases

Breath of Hope: Giving a future to patients living with rare pulmonary diseases

15 September 2015 10:15 - 12:15

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Elsene, Belgium



European Parliament, Room 3H1

10:30 – 10:40 Welcome and introduction 

10:40 – 10:55 The European IPF Patient Charter

10:55 – 11:10

11:10 – 11:25

11:25 – 11:40 State of play of lung transplantation in Europe

11:40 – 11:55 The role of education and training of doctors in the 

11:55 – 12:10 The role of specialist nurses in disease management

12:10 – 12:15 Q&A and Wrap-up

Elena Gentile, Member of the European Parliament

Jean-Pierre Huybrechts, Belgische vereniging voor longfibrose

Rosalba Mele & Daniela Magnani, AMA Fuori dal Buio

Commission initiatives in the area of rare diseases 

Agnes Mathieu, Medicinal Products and Authorisation Unit, Health 

Systems and Products Directorate, DG Health and Food Safety, 

European Commission

Iiro Eerola, Innovative and Personalised Medicines Unit, Health 

Directorate, DG Research and Innovation, European Commission

Arne Neyrink, Leuven University, Representative of the European 

Society of Organ Transplantation 

management of rare pulmonary diseases

Peter Fsadni, Standing Committee of European Doctors 

Ber Oomen, European Specialist Nurses Organisations

Elena Gentile


This event is funded through a grant from Roche




EUROPEAN PARLAMENT

Espace Léopold, Rue Wiertz 60, 1047 Brussels, Belgium Get directions

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