Building a stronger voice for IPF

IPF World Video

"BREATH OF HOPE" 

on-line the video
of the
IPF World Week!

 Share and spread the video of IPF World Week 2013. It was shot in Croatia during a meeting of the associations active in the field of suffering from idiopathic pulmonary fibrosis and in Italy, Modena. People who participated in the campaign are patients, family members, physicians, medical students, all convinced that sharing is the shortest way to get effective goals.

RARE DISEASE DAY

Ideas for supporting the campaign

Some easy ideas

  • Display posters, images or other awareness raising media such as ballons
  • Distribute stickers and flyers
  • Organise rare diseases events around topics paramount to patients
  • Organise a competitive event focused on rare diseases
  • Coordinate letter writing or email campaigns to local policy or national policy decision makers
  • Arrange to meet with local and national authorities

A bit more planning

  • Send a press release to the media
  • Award advocates of rare disease patient causes
  • Organise interviews with the media
  • Organise fund-raising events
  • Invite a VIP to endorse the Day
  • Implement a help line providing information about rare diseases
  • Organise a visit to a rare disease research lab by an Parliamentarian or Health Minister

    The sixth Rare Disease Day takes place on 28 February 2013. This year's slogan "Rare Disorders without Borders" emphasizes the need for international cooperation. Join an activity taking place near you to demonstrate global solidarity. Let's go beyond borders for rare disorders. Show your solidarity today!